My friend's son contracted Kawasaky syndrom when he was 5 years old. His name his Michaël et he is now 13. It took 7 days for de doctors to find that Mike was sick because of KS. He stayed at the hopital for more than 3 weeks, includind 7 days in intensive care. Permanent damages were done to his heart, his left et right coronary had big anevrism (10 to12 millimeters). He came back home, week et discouraged. Beaucause of the anevrisms he had to take medication «coumadin» and «aspirin». That medication is there to save his life but could take it at any time beaucause of the risks of fatal bleedind. This little kid had to stop playing like his friends. The life of his mother became a nightmare of always worrying for his safety. At 6, a child doesn't understand why he cannot go riding his bike or run with his friend or play soccer. Every physical activity becomes a risk. The family had to change their habits. Regular medical check up was necessary. The doctors were predicting a
long life for Michaël but he had to continue with the medication and all of its restrains. At 10 years old, a good news, Mike can stop take Aspirin, that reducing his risk of bleeding. His heart condition his the same with two big anevrisms. February 3th 2006, Mike has to have a test by catheter to go sea inside is coronary. After the test, the doctor said, the procedure went well but I have to talk to you. The test revealed that the right coronary was totally blocked by stenosis and calcification. Mike's mother was totally devastated by that terrible news. What was even worse, no one could give answers to our questions. Mike is the first in our country to be in that condition. The team of doctors decided to contact some doctors in Japan to see what they do in these conditions. First thing, we have to forgive the right coronary, there is nothing to do to try to unblock it. For the left coronary they suggested to use the rotablator and put a stent between the two anevrisms.!
The procedure was scedualed on july 6th. A team of specialists was pu
t together for the procedure. All that stress for that day and nothing of the procedure was done. They said is left coronary was blocked at 50% et the blood pressure was at 90%. These values indicated to them that the procedure wouldn't improve Mike condition and chose to wait. In December, 5 months later, the cardiologist called to inform us that Mike has to get the procedure as fast as possible and it should have been done last july. The cardiologist went to a congress in Argentina and saw a presentation of doctors from Japan. They presented a few cases like Mike. What they do in similar cases is that they use the rotablator by catheter to enlarge the coronary where there's stenosis. No stent seams necessary. They found that after the use of the rotablator, the width of the coronary stays stable. So this is the project in the near future for Mike. The procedure implicates that he will have to take more of anticoagulation medication. That means he will be at high risks of b
leeding. He will be more limited in his activities. Last week, it was his birthday, he's now 13. Medications, medical treatments, restraint in day to day activities are in for his future. In all of that we only saw one moment of discouragement last summer because he's so positive, courageous, generous and full of dreams. He still believe that one day he's going to be cured! We wanted to share our story to tell others to keep hoping and living even if you have to fight for your child's health and quality of life!