Asperger,s Syndrome Support Network (QLD) inc

 

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The management committee of the ASSN would like to invite you to leave 'your mark' on our site. We would like you to share any comments, statements or thoughts you might have about this site, or about living with ASD. If you would like someone to contact you with more information about the ASSN or about the benefits of membership, please email us directly at mail@asperger.asn.au. Thank you for taking the time to visit with us.

Name:
spectrummum
Location:
worldwide
Comments:
http://autismandaspergersinthefamily.freeforums.org/
for parents

for adults on the spectrum
http://aspergersadults.freeforums.org/index.php
Name:
Web site URL:
Location:
Comments:
I will be honest, I think the hype about this syndrome is WAY overdone. I mean, the way people talk about it its as if we are so different from other people. Using skills and intuition we can learn the people skills. I prefer to think that I am picking up on people skills and that and plus do you ever consider that some people who supposedly have this syndrome, some of it is caused by trouble trusting people, because of bad relationships. I mean NORMAL or whatever people have the same problems, by and large. And AUTISM....Well, lots of people want to spend time by themselves. Why label people? Just let them be. You think the Asperger symptoms are exclusive to that person, think again.
Name:
Stephen Hugh Ruppert
Web site URL:
Location:
Toronto Ontario
Comments:
I am looking for my three half siblings. Sean, Leon, and Anna. My birth mother lives in Austrailia, but I have yet to meet her and my brothers and sister. I was born in Kitchener Ontario. January 24 1968. I know that my birth mother is irish and my birth father is scottish. My mother contacted the catholic children's aid in 2000 and submitted her non-identifying info for me to find and I would like very much to meet her and to know my heritage. Thank you for this site. Please email me if you know any info? lori0011332yahoo.ca
Name:
Gavin
Location:
Australia
Comments:
Hi everyone i just came across this web page and would like to offer a link to a forum for people with autism spectrum and related conditions.

http://disabilityasone.myfastforum.org/

Hope everyone pays a visit and joins it is a new site looking for new members. Hope to see you guys there. I will also add a link in the forum to this site.
Name:
Susan
Web site URL:
Location:
Toowoomba
Comments:
I'm 32 years old and have Aspergers syndrome.firstly,an autism group does exist here,but it really isn't for adults with the condition. Aspergers is lifelong and support needs to continue into adulthood. Toowoomba people can't always make it to Brisbane for support,especially if the meetings are at night.Secondly,does any safe,affordable accommodation exist in Brisbane for people like myself? I can only afford to pay up to $200 a fortnight because the pension doesn't pay a lot.
Name:
BOBBY
Web site URL:
Location:
Comments:
ASPIE FROM UK...;-)
Name:
Caroline
Web site URL:
Location:
Arizona-USA
Comments:
I have a client who I firmly believe has AS, but his entire history since childhood has been ADHD, ODD, Mood Disorder NOS, and all of the schizo-diagnoses. However, he does not sleep well, maybe 3-4 hours a day, and his A/H and V/H are indeed mild, which lack of and poor sleep can trigger (hallucinations). Also, he was sexually abused as a child, though I don't know how the perpetrator was related to him or known him. And in my experience, people who have been victims of sexual abuse very often have symptoms of A/H or V/H throughout their lives, similar to PTDS symtpoms and often are diagnosed with schizoaffective d/o or a mood disorder w/ psychotic features. Since his hallucinations are indeed mild, and since his symptoms appear quite classically AS in many ways, I will keep encouraging his prescriber for the correct diagnosis. Nonetheless, this man is in his 40s, and it will be like starting over for him. If anyone knows of any support groups or services that an adult with AS can benefit from in the Phoenix, Az area, I would appreciate you sending me any information. I am aware there is an adult AS support group in Phoenix, but I don't know if they are active. Hopefully I'll be able to track them down. Thanks for reading.
Name:
paul
Web site URL:
Location:
qld, au
Comments:
I am a 25 yr old Aspie from Ipswich (Near Brisbane), Diagnosed in late 2001 by Attwood. Actually 5 yrs on November 5th.
I was constantly told at school that I wasnt "all there" by the other students, although I wasnt intellectually impaired in the traditional sense, I still had/and will always have problems with being around people.
For NTs who refer to AS as "Mild" Autism, I certainly disagree, no Autism is mild, I havent been able to do work, paid or other, I tried doing volunteer work at a sheltered workshop a while ago, but I found that while I had a little difficulty with the hands on work, I had extreme difficulties with the socialisation being around other people, even those with down syndrome and stuff like it, I really had nothing in common with.
As a result, I havent had many relationships, and It has reached a point where I can ONLY go in public if I wear sunglasses, mind you, I have a few places of solitude I feel comfortable in.
Yet I remember days of the week for the last 40 yrs and I know most celebritys birthdays and information about certain topics.
I also find that if I am watching a movie, I keep rewinding to a scene that it might not even sound funny to other people, but I watch the scene over and over again
I look around at NTs, the younger ones who all wear the same clothes as there friends and I think "Why cant they be individuals", Looking at the way NTs act, I am glad I am not one of them. Although some are OK.
Looking for a reasonable NT or fellow Aspie to chat with, email above.
Name:
jomugu
Web site URL:
Location:
london
Comments:
i dey maga good work
Name:
Clare Ritter
Web site URL:
Location:
Marton, North Island, New Zealand
Comments:
Amazingly enough I have heard of your site through Rhonda Valentine who lived her in Marton NZ many years ago, my dad found Rhonda on Old Friends site and took note of her interest in Aspergers. I have since been in contact with Rhonda and she has given me this site. To which I am extremely greatful to her.
Clare Ritter
Name:
Pi
Web site URL:
Location:
international
Comments:
I am 45. I am a female. I was diagnosed with Autism when I was about 3 or 4. I live in Australia for three years of my young life, the worst of sexual abuse happened to me there by my father. I was sexually abused; incest, and manipulated and physically abused by my parents until the age of twenty one. I got a way. I lived on the streets of America. I died once, flat lined. I came back. I went to college. I got an undergrad and masters in psychology. I have a 19 year old son with Aspergers and Aspergers seizures (one thing more you need to watch for)sorry. I have two daughters. I home schooled all my children for years, and was a foreign university professor in China. My children love me, and they repsect me, and they are honor students today and have well developed egos.
-Pi
Name:
Pi
Web site URL:
Location:
international
Comments:
Okay, I am sorry, but I just need to give this information that would be profound in regard to the self esteem of those with Aspergers. In regard to you lumping together other disorders and writing what you did below, which is not Aspergers, but Personality disorder, I have written information that rules out personality or borderline disorders for those with Aspergers. As I said before those with Aspergers make for some of the most wonderful parents in the world. Who are you dealing with?!!! I had to correct most of your work, but it is below and looks better, and I made my comments afterwards

You said :

In this article, I am seeking to raise concerns that there are some adults with Aspergers Syndrome whose behaviors have the potential to be experienced by a child as abusive, although I must stress that these behaviors are unlikely to include sexual abuse, according to the range of examples known to the writer.

Family members describe the Asperger person as appearing to be completely self-centered and unable to acknowledge or display awareness of the individual thoughts, feelings, interests, preferences, abilities, stages and needs of individual family members, As a result, the children of the family can feel quite neglected, rejected, of no importance to
The Asperger parent, and quite cruelly treated, or that they can never achieve their admiration, attention or love.

All their efforts to reach out to the parent or perform well at school or at Home seem unnoticed and un-affirmed. If the Asperger parent is of a more aggressive, retaliatory or controlling nature, the child may experience regular criticism, correction, condescending comments in the form of mocking and put-downs, verbal abuse, rage and
sometimes physical abuse in the form of heavy-handed corporal punishment, lashing out and striking, or other more secretly inflicted pain such as twisting or squeezing certain limbs or muscles.


I say, and my children and family beg me to say:

What you are describing are people with personality disorders, and Aspergers does NOT have personality disorders:
Page 696 of the DSMIV
Under differential diagnosis-
There may be GREAT difficulty differentiating individuals with Schizoid personality Disorder from those with milder forms of Autistic Disorder and from those with Aspersers’ Disorder. I am about to come out with my book that will explain that the two most things one has to worry about with regard to Aspergers disorder is Schizophrenia; visual and auditory hallucinations have to be prominent, not mild. The schizophrenia can begin a trace path with mild to moderate and then severe depression. The severe depression as a result of social deficits can then turn into to mild, then moderate, or even severe depression and can onset schizophrenia, and the classification of paranoid schizophrenia, not hebraphrenic type (classified as charming).
The other worry for Aspergers is...suicide.
The deferment of a Schizoid or Schizotypal or personality disorder for Aspergers is NOT under Aspergers disorder in the DSM. It is mentioned under personality disorders so that if someone has Aspergers or high functioning Autism, AKA Autism spectrum scale, then they are free, or what psychologist say AXIS is deferred with regard to personality disorders. There is also NO such thing as bipolar and Aspergers. There is no such thing as anti social personality disorder and Aspergers. There is no such thing as coupling or dual diagnosis of Aspergers than what I mentioned previously. Please take note of this and peace in, peace out as they say in California.
Love Pi


Name:
Pi
Web site URL:
Location:
international
Comments:
are you out of your mind!? do you even have a degree to support your assumptions about Aspergers!?? You have just put the hope for a new people coming forth on the face of the Earth back to Stone age. My gods, I have spoken in depth to my own family members who have been involved with Aspergers, and others. They are amazed that you would write such hidous information on the Internet about parents with Aspergers. You have got to be dealing with personaly disorders. I am a psychologist, and I have been working with Aspergers for years. My 19 year old son has Aspergers. I hope the best for you, and I hope you recieve better information. There are certain facts in the DSM on particular pages that rules out the things you accuse indivduals with Aspergers of having, and you clearly have not read enough of the DSM. It has been my close companion for years. I pray your over-zealousness and lack of professionalism does not meet too much of the public.
Name:
Gestalt
Web site URL:
Location:
Loganlea
Comments:
I have Auspergers, but I refuse to call it a disorder or disability. For me it is a diversity, with weaknesses and strengths. I don't want a cure or treatment, just to conform to an ideal of normal. The only downside is the feeling of being dumped on a primitive alien world while the mothership sails off into the sunset. But then, at least I am not alone. :)
Name:
Em
Web site URL:
Location:
Brissie
Comments:
If you are looking to discuss issues or have questions with other parents or people with AS, please come to either

the Discussion Board (more parents there)http://disc.server.com/Indices/195901.html

or the Forum
http://forum.asperger.asn.au/

Both can also be accessed from the home page.

There are people of all age groups there, we currently have a woman in her 60's, adults newly diagnosed in their 30's, parents of ASD kiddies.
Name:
Danny
Web site URL:
Location:
malham cove, england
Comments:
Im 14 & had so much trouble with talking to people my whole life, i have 99% of the symptoms of asperger's syndrome. Ive been bullied so much in school, so i had to leave, i know and my parents know its aspergers. Even my GP has diagnosed me as depressed and blamed it on Asperger's. I just want to know, how can i get rid of it? If i can't, then what steps can i take to improve my social skills?
Name:
Web site URL:
Location:
Comments:
children/kids and young people with Asperger‘s Syndrome and Autism have no problems with social nudism/nudity.

Nudist Beaches, Camps, Clubs, Resorts.
Name:
Susan
Web site URL:
Location:
toowoomba
Comments:
I'm 31 and have had Aspergers since birth. since finishing school,I've found it hard to gain even a basic job due to my condition. At the interview,I'm confident and tell the person my experience,but as soon as I mention Aspergers syndrome,a barrier goes up and they don't hire me. Instead,they probably choose someone "normal" who has the gift of the gab and who won't be a liability to the business. My condition is well controlled and I've made incredible gains in my social skills. It sickens me that people won't look a that and,out of pure ingnorance,judge me on my ilness,not on my qualities and what I CAN do.If any prospective employer in Toowoomba sees this site and reads my entry,please open your eyes and at least learn about Aspergers before you dump myself and others in the garbage bin.
Name:
Geoff
Web site URL:
Location:
Caboolture , Queensland
Comments:
I am hoping somone can advise me. I suspect that my 35 year old son has Aspergers. Although undiagnosed, he has several 'symptoms' according to infornmation I have read.
Can anyone answer three questions for me ;
(1) Who can diagnose ?
(2) Is a referral required
(3) Is there Treatment for Aspergers ?

I will try to contact my son's GP but confidentiality may prevent any action here.

Any input would be appreciated,
Thank you, Geoff Caboolture Qld
email ~ justgeoff@bigpond.com
Name:
Amy
Web site URL:
Location:
Indiana, USA
Comments:
I am new to this site. I was reading over some of the commets and really can relate to so much of this. My son is 14 and will be a freshmen (9th grade) next year. I also have a 15 year old daughter. Being a teen is tuff enough without having Asperger. We are really wanting to help both kids and I feel so overwhelmed. I feel like all I am doing is putting out fires. Emotions are just crazy!!! My son sometimes is better then my daughter with out a disorder. I have encouraged her to chech your site out. I would love to hear from folks with teens.
Amy
Name:
Jo
Web site URL:
Location:
Mount Isa
Comments:
Jacob, 14 yrs old & is loved so much."Always new something was wrong". Growinging up in a family of 5 children, All the others reached there milestones with(no worries). Jake a little different, very serious,organised, honest, isolated by his own choice at an early age & didn't like seeing the world in a bad way. (violence even though on t.v he didn't handle well) Years of recommendations to bush childrens & dr's, lead me to believe anxiety was Jacobs main diagnosis. Until jacob reached high school, My husband & I were at our wits end & going to pull Jacob out of school because of the bullying when a teacher stepped up & said that they would work with us to help Jake. Pulling out all stops, Jake was put into a program called pathways (god bless) mostly dealing with kids from a bad background) A teachers aid recognised the signs of autism & put me on the right path to Jake's advantage. Would love to hear from anyone who has a son who has been diagnosed late for aspergus syndrome
Name:
susan
Web site URL:
Location:
Toowoomba, QLD
Comments:
I'm 31 and have had Aspergers all my life. My childhood was one of teasing,dysfunction and pain.This led to inner shame which expressed itself in addictive behaviour and low self esteem.Not being able to achieve society's expectations such as marriage,children and a full time job is very painful for me because I want to fit in and not be a black sheep. Does anyone else feel the same?
Name:
Lyn Knox
Web site URL:
Location:
Launceston Tasmania
Comments:
My daughter has Aspergers. She has recently moved to Qld with her father and is not finding life(particularly at school)easy. The Education Dept in Qld is very different and we have hit lots of barriers and a huge lack of understanding. Two schools have already expelled her- both within the first 4-5 days, which came about from them not implementing the most basic of strategies that we had told them would help her cope. She has seen Julie Fox, who suggested this website as a source of information about schools that have an understanding of Aspergers and a desire to help students with this syndrome.
Any suggestions would be good- she is a great kid and we just want her to be happy.
Name:
Sara
Web site URL:
Location:
Belgium
Comments:
Hi, I'm a 14 year old teen living in Europe. For my entire life, my family and I have been stuggling to find out why I acted so differently than other children my age. After finding this site and visiting many doctors and hospitals, I think we've finaly come up with the fact that Asperger' Syndrome is what I have. It's awsome to know I'm not alone!
Name:
J ohn Reid
Web site URL:
Location:
Indiana USA
Comments:
70 y.o. Aspie, registered nurse, dx'd with AS four years ago, and extremely grateful to have my entire wacko life explained in a few minutes.
Over the past four years, I have written about two dozen pages, mostly a somewhat bizarre medical history as it relates to AS and my own experiences with common Aspie traits. Will forward to anybody interested. I have included a refutation of the theory that AS is a form of attachment disorder. (This idea angers me!)
Are there any gray and wrinkled Aspies out there who would like to share their experiences?
Name:
deb
Web site URL:
Location:
qld
Comments:
I haven't visited this site for a long time now. Things have certainly changed a lot in our house hold. My son Josh who has ASD is just about to turn 13. He has started high school which has brought on a whole lot of new challenges. He does not seem to be understanding the whole education side of things. We found out only a few days ago that he has 2 assignments due & they were handed out in the first week of term, but josh really didnt understand that they needed to be done. We have noticed a new side to Josh. He seems to be bluffing his way throught school & life. I am very scared that he will not be able to function in day to day working life when he is older. there is not much help in Rocky & we cannot afford to keep travelling to Brisbane. I find things are really hard now our daughter is nearly 3. She does not like josh grabbing her & kissing her all the time. We keep telling josh that she doesnt like it & explaining the signs she is giving but he simply doesnt seem to listen. We even explain how he doesnt like it so she feels the same way. He seems to see her as a toy. He will play with her one minute & then do something to make her cry so I will come & get her. Our youngest son who is 10 1/2 has found his own way of dealing with josh, but he still wants a brother that will play with him like his mates do & gets very dissapointed when he doesnt. One of the main things is josh will upset our son or daughter & expect them to be over it in a few minutes & cannot understand why they are not & will get quite angry at them for it. There are many times when I feel so along & wish we could get out once in a while but we get sick of the opinions of people who have no understanding & think our child is just rude & needs disipline.
Name:
Em
Web site URL:
Location:
Brisbane
Comments:
If you are looking to discuss issues with other parents or people with AS, please come to either

the Discussion Board (more parents there)http://disc.server.com/Indices/195901.html

or the Forum
http://forum.asperger.asn.au/

Both can also be accessed from the home page.
Name:
Narelle
Web site URL:
Location:
North Queensland
Comments:
Our son is currently undertaking the assesment for AS. 1 thing I am not sure about though is the anger thing he experiences. He becomes so angry or upset that he seems to not remember a portion of his day surrounding the 'episode'. He is usually set of by a change in routing at school or becomes confused, usually some 'small' event sets him off. Is this normal AS or could something else be affecting him as well?
Name:
susan
Web site URL:
Location:
Toowoomba
Comments:
I'm an adult in my early 30's with Aspergers syndrome. Unfortunately, there is little support for Adults with this condition in Toowoomba. I can visit Brisbane sometimes,though,and would like to know more about the adult support group,especially where and when they meet. I feel that I need to meet others with the same condition so I can feel I'm not alone. Toowoomba can be isolating for people like myself.
Name:
Cindy
Web site URL:
Location:
Comments:
Ian is my son. He turned 13 yesterday. I am also the mother of 4 other children, younger than Ian. He is proud to be a teen. However, he's always upset or very angry. I speend alot of time so confussed with what to do. I have read alot but not nearly enough. I just wish I had a friend to chat with who understands this, and I wouldn't have to explaine everything over and over to everyone i meet.
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