Date June 5, 2003
Time 0850
Event My mother died of CJD
Mom's wasn't diagnosed with CJD until 3 weeks before her
death. There is a tremendous need for education about
CJD. Her MD had never treated anyone with the disease. A
specialist in neurology finally made the diagnosis. I am a
critical care nurse and even today in 2005, when I say my
mother died of CJD to hospital staff I have to explain the
diagnosis and the disease process. It has taken me 2
years to begin to look for answers and support websites
because as all of you know, it is a horrible disease and
the grieving continues.
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